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PROM set development for GBS and CIDP

Date published: May 9, 2024

In this study, we aim to develop a comprehensive set of Patient-Reported Outcome Measures (PROMs) that reflect the most relevant outcomes for patients with GBS and CIDP, by actively incorporating patient perspectives.

A list of research articles

  • The role of B lymphocytes in the progression of chronic immune-mediated neuropathies

    • Study on CIDP

    In addition, I am studying the role of B lymphocytes in the progression of chronic immune-mediated neuropathies, including Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) and Autoimmune Nodopathy (AN). Through this research, we strive to enhance diagnostics, clinical care, and treatment options for patients affected by these conditions.

  • Detecting anti-paranodal antibodies

    • Study on GBS

    My research primarily focuses on investigating novel pathogenic antibodies in paranodal regions associated with immune-mediated neuropathies. The aim of my project is to improve diagnostic methods for detecting anti-paranodal antibodies and to determine the prevalence of these harmful autoantibodies in patients with Guillain-Barré Syndrome (GBS).

  • Time to treatment study

    • Study on GBS

    In this project, we aim to describe the current practice of time to treatment. We also assess the association with functional outcome in patients with GBS who received first-line treatment with intravenous immunoglobulin or plasma exchange. This study is performed using data from the International GBS Outcome Study (IGOS).